This is a bit of a ‘Pensieve dump’ (see previous blogs for explanation š). I’m sort of hoping that, if I put this all down on paper (screen?) it might lessen the effects on me (Iām ever hopeful š¤Ø) Also – itās p always hard to write this sort of post without it sounding like a plea for sympathy. That is really, really not my intention with any of the stuff I dump on here – it just feels better if I get it out my head š So no sympathy is needed (my own self-pity is more than enough for all of us š)(but positive thoughts are always welcome š).
I used to roll my eyes when I heard about celebrities who had committed some misdemeanour and were heading to rehab because they were āaddicted to prescription painkillersā. It always sounded like a cover-up for some other kind of addiction. Iām a psychiatric nurse, by training, so I knew about assorted addictions, and I have up-close-and-personal experience of alcohol addiction (not me š) and Iāve known people who had become dependent on things like Diazepam, back when they handed them out like Smarties. But I thought pain medication addiction was something to that happened to other people. People in America who had private doctors, who would prescribe anything in any quantity for them, if they were prepared to pay. And I rolled my eyes and got all self-righteous when they crashed their cars after driving under the influence. And when they talked about how they had relapsed back into addiction because it was too hard to stop taking them.
But here is my confession. My name is Jan and Iām addicted to pain medications. And I have driven when I shouldn’t. And Iām finding out the hard way how difficult it is to get off these things, which have helped me live a semi-normal life.
I’ve been taking fairly huge doses of Tramadol and Pregabalin for years – they were prescribed by the NHS pain clinic for my fibromyalgia and nerve pain in my thoracic spine. I was told about side-effects of taking them – but there was no discussion about what would happen if I ever decided to stop taking them. Maybe they expected that I would take them for ever – since my condition is chronic and not likely to get much better. And initially, they seemed helpful – they did take some of the fibro pain away (although nothing ever really worked for my back).
The side effects were pretty dire – they gave me muscle twitches and added to my already foggy brain – which made them a major part of why I had to eventually stop working. Taking them makes driving difficult. So, if I was working a distance from home I had to choose to either take the full amount and be relatively pain free for the day at work (but risk driving in a drugged state), or take less (or none) and be unable to work effectively due to the pain I was in š£
ThisĀ also proved problematic when I happened to fall in love with someone who lived a long way away. I don’t think she ever quite understand Ā why I was sometimes grumpy and emotional (more than normal, I mean š) when I got there after a five hour drive. Ā Maybe that was also when I started to feel more empathy with people who have had accidents when on medications. There were a couple of occasions when I took my usual amount – wanting to be ok when I arrived. Serious and stupid mistake š³Ā IĀ remember nearly falling asleep on the motorway. I got there in one piece more by good luck than good judgement.
Which was why planning my road trip last year was a huge process of juggling the driving part of the holiday and the timing of the medications to make sure I could be comfortable when I was with everyone I wanted to see, but still be safely able to drive. It was taking its toll by the last day of driving – when I finally got to St Ives, I was a bit sore and in a bit of a state – and scraped my car on a wall with some spectacularly bad reversing š¤¬
Anyhoo, I digress. When it became clear that I couldn’t do my job to the standard I wanted, I was fortunate enough to encounter an HR department who didn’t quite understand their own systems and I was able to fight for ill-health retirement. And so life changed – and it was easier to take part in things I enjoyed because I had more energy.Ā Now, my only driving involves trips across the M8 to visit the family. But I started to notice things. I was being much more careful about not taking meds if I had to drive. But, when I accidentally forgot to take the next doseĀ of Tramadol I felt like I had flu. And the severity of the withdrawal effect scared me. So I started to think about reducing or getting rid of these really strong medications from my body.
I knew there would be side-effects. And I knew I couldnāt stop suddenly. So I tried to reduce some of my doses. And I failed miserably. The withdrawals were horrible. So I decided to stop stopping – until I felt better š
And now Iāve decided to try again. So I was sensible (not like me) and have seen my GP to figure out how. And he was surprised at how much I was on and how long it had been left without any kind of review. I know that, at the start, it felt like a miracle cure for my pain. But that didnāt last long. And when I thought about it, it seemed that I ended up with both the pain from the fibro and the back pain as well as being doped up with the side effects of the medications.
So detox it is.
And I am feeling like absolute shit, with all the side-effects.Ā I was warned what could happen but didnāt really know how it would feel. There’s the wonderful rebound nerve pain and muscle twitches (which are just dandy if you’re carrying a hot cup of coffee or trying to put mascara on š³) . Not forgetting the general feeling that you have flu 24/7. And the …………….err……digestive disruptions that mean itās a good idea to stay close to a toiletĀ š³Ā And Iām reducingĀ my usual breakfast treat of Ā ārealā coffee for a while. Iām sticking with one cup a day and itās decaf the rest of the time to see if it helps with anxiety feelings.
Because the anxiety is by far the worst bit. Iāve been āanxiousā before (obviously) but itās always been for a reason. Now I’m having what I suppose are panic attacks for absolutely no reason whatsoever. The first time I woke up feeling like I had just had the fright of my life and life was coming to an end, I had no idea what was going on. The pounding heart and sweating and the feeling as if something absolutely horrible has happened or is about to.Ā Ā I donāt think Iāll be going to see A Quiet Place. Who needs horror movies when you have your own personal one going on in your head, replaying every bad or embarrassing thing youāve ever done in your life š±
I think my stress hormone levels must be through the roof. And that’s the thing – there is very little respite from that āfight or flightā feeling. Itās relentless. I actually have no trouble getting to sleep (thank you Audible for reading me to sleep š) but I wake up with panic attacks several times through the night. The effect on my thinking has been awful too. It’s like all the work I’ve done on my ‘self-care’ over the past few years has gone to pot. I feel as bad (if not worse) as I did when Sarah and I split up – nearly 7 years ago. I have no attention span, so even reading or watching movies is hard. And I have virtually no motivation to do the one thing that I should do more than anything – get out the house. Distract myself. All I want to do is stay in and hide, which I know is counter-productive. This is when living on my own is really bad for me – nobody to boot me (or persuade me gently) out the door.
Iām clinging to the thought that that this has an actual, physical cause, so it will pass.
So, I apologise if my social media input is a bit sad/angry/depressed for a while. I have to keep going with this. There may come a point when I need to start taking something to help with pain management. But I now have the opportunity to put all the strategies we were given at the pain clinic for āliving with painā rather than āsuffering fromā it. Might work. Might not. But the alternative is to give up and start taking the full doses again. And then Iād probably have to go through this again in months or years. And I aināt doing this again. Ever!
Now, having dumped all that, I need to start to kick my own backside and get out the door šĀ Outside time will help. I think. Maybe? And there is cake outside Ā šš°š
Be kind to each other xx